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Parkinson- Carnet de Recherche 8 - Le pouvoir du rythme dans la maladie de Parkinson

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Le rythme au service du mouvement   Depuis plusieurs années, les recherches en neurosciences montrent que le rythme peut jouer un rôle important dans l'organisation du mouvement chez les personnes vivant avec la maladie de Parkinson. Dans notre expérience, le rythme ne servait pas uniquement à soutenir le mouvement. Il devenait également un outil de communication, d'attention et de participation. Grâce à des signaux sonores simples, à la voix, au chant, au kazoo et au système sonore PIN-PON, les participants développaient progressivement une meilleure coordination tout en partageant une expérience collective. Le rythme créait une référence commune permettant d'écouter, d'attendre, de répondre et d'agir ensemble. Ainsi, il devenait un véritable langage favorisant le mouvement, mais aussi la relation humaine.

Parkinson- Carnet de Recherche 9 - La maladie de Parkinson : voir la personne avant les symptômes

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 Bien plus que des symptômes : une nouvelle vision de la maladie de Parkinson La maladie de Parkinson est généralement associée aux tremblements, à la rigidité musculaire et au ralentissement des mouvements. Pourtant, ces manifestations ne représentent qu'une partie de la réalité. Vivre avec la maladie de Parkinson signifie également faire face à des difficultés moins visibles : diminution de l'attention, perte de confiance en soi, isolement social et modification des relations avec les autres. Une approche véritablement centrée sur la personne ne se limite pas au traitement des symptômes. Elle cherche à reconnaître les ressources, les capacités et le potentiel de chacun. L'expérience menée au sein de l'Association Parkinsoniani del Canavese, en Italie, a montré que le mouvement, le rythme, la musique, la voix, la jonglerie adaptée et les activités de groupe peuvent favoriser la participation, renforcer la confiance et améliorer les relations humaines. Au-delà de la...

Parkinson-ASRS Research Notebook 10 -No One Should Face Parkinson's Alone

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  Beyond Exercise:  The Life-Changing Power of Group Activities One of the most valuable aspects of our programme was the sense of community that gradually developed among participants and caregivers. The weekly workshops became much more than exercise sessions. They became opportunities to meet friends, share experiences, support one another and enjoy meaningful social interaction. Caregivers were active participants rather than passive observers. Working together in paired activities created new opportunities for communication that extended beyond everyday caregiving. One participant regularly prepared coffee before each session. Another caregiver brought traditional biscuits to share with the group. These small gestures helped create an atmosphere of warmth, friendship and belonging. Perhaps the most powerful comment we heard came from a participant who said: "Today, I didn't feel invisible." Those few words summarise the true purpose of the programme. The g...

Parkinson -ASRS Research Notebook -11- Beyond Juggling: A New Way to Reconnect Movement, Mind and Confidence

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Rediscovering Movement One Throw at a Time At first glance, juggling may appear completely unrelated to Parkinson's disease. However, adapted juggling offers a surprisingly effective way to combine movement, attention, coordination and social interaction. Unlike circus juggling, adapted juggling uses soft balls, lightweight rings and modified clubs that are safe, accessible and easy to handle. Participants are never expected to perform complex tricks. Instead, simple activities such as throwing, catching or passing a ball encourage visual attention, hand-eye coordination, balance, motor planning and concentration. Perhaps even more importantly, adapted juggling creates opportunities for shared success. Many participants initially believed they would never be able to complete even the simplest task. Through gradual progression and personalised support, they discovered abilities they had thought were lost forever. The greatest achievement was not learning to juggle. It was ...

Parkinson - ASRS Research Notebook 12- Can Rhythm Change Movement? Exploring New Possibilities for Parkinson's Disease

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  Rhythm That Moves:  A New Approach to Parkinson's Disease   Scientific research has demonstrated that rhythm can play an important role in supporting movementin  people living with Parkinson's disease. External rhythmic cues provide a temporal reference that may help initiate movement, improve coordination and reduce hesitation during everyday activities. In our workshops, rhythm became much more than a therapeutic tool. Simple sounds, vocal exercises and shared musical experiences helped participants organise movement while simultaneously improving attention, communication and group interaction. Music was never used simply as entertainment. Instead, it became a common language that encouraged participants to listen, cooperate and move together. One of the most original elements of the programme was the PIN-PON auditory system , developed to guide movement through simple high- and low-pitched sound cues. Participants gradually learned to associate different ...

Parkinson -ASRS Research Notebook 13 - Parkinson's Disease Beyond Movement: A Person-Centred Approach

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  Looking Beyond Parkinson's Disease: Putting the Person Firs When most people think about Parkinson's disease, they immediately picture tremors, muscle stiffness and slowed movement. Although these symptoms are among the most recognisable features of the condition, they tell only part of the story. People living with Parkinson's disease often experience changes that are less visible but equally important. Difficulties with attention, concentration, confidence, social participation and self-perception can have a profound impact on daily life. For this reason, support should extend beyond medication and physical rehabilitation. A truly person-centred approach recognises that every individual has personal strengths, interests and abilities that deserve to be encouraged. Our experience in Northern Italy explored an approach called Artistic Social-Recreational Stimulation (ASRS) . Through rhythm, music, movement, voice, adapted juggling and group interaction, participants w...

Oltre il tabù: Quaderno 14 : Storia, scienza, cultura e neuroscienze della sessualità umana

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 L'atlante della sessualità umana Il tabù della sessualità – Volume 1 Dalle origini dell'umanità alle neuroscienze contemporanee Il blog ufficiale del saggio di Clemente Ernesto De Martino La sessualità accompagna l'essere umano fin dalle sue origini ed è una delle dimensioni più profonde, affascinanti e complesse della nostra esistenza. Eppure continua a essere circondata da pregiudizi, silenzi e tabù. Questo blog nasce per accompagnare il lettore alla scoperta del Volume 1 del saggio  Il tabù della sessualità – Dalle origini dell'umanità alle neuroscienze contemporanee . Attraverso articoli, curiosità, riflessioni e anticipazioni, verranno esplorati i principali temi dell'opera con un linguaggio divulgativo, rigoroso e accessibile. Un percorso che intreccia antropologia, storia, biologia, neuroscienze, psicologia e cultura, con l'obiettivo di comprendere come la sessualità abbia accompagnato l'evoluzione dell'essere umano fino ai giorni nostri. C...